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Speech, communication and use of augmentative communication in young people with cerebral palsy: The SH & PE population study
Resource type
Authors/contributors
- Cockerill, H. (Author)
- Elbourne, D. (Author)
- Allen, E. (Author)
- Scrutton, D. (Author)
- Will, E. (Author)
- McNee, A. (Author)
- Fairhurst, C. (Author)
- Baird, G. (Author)
Title
Speech, communication and use of augmentative communication in young people with cerebral palsy: The SH & PE population study
Abstract
Abstract
Background
Communication is frequently impaired in young people (
YP
) with bilateral cerebral palsy (
CP
). Important factors include motoric speech problems (dysarthria) and intellectual disability. Augmentative and Alternative Communication (
AAC
) techniques are often employed. The aim was to describe the speech problems in bilateral
CP
, factors associated with speech problems, current
AAC
provision and use, and to explore the views of both the parent/carer and young person about communication.
Methods
A total population of children with bilateral
CP
(
n
= 346) from four consecutive years of births (1989–1992 inclusive) with onset of
CP
before 15 months were reassessed at age 16–18 years. Motor skills and speech were directly assessed and both parent/carer and the young person asked about communication and satisfaction with it.
Results
Sixty had died, eight had other conditions, 243 consented and speech was assessed in 224 of whom 141 (63%) had impaired speech. Fifty‐two (23% of total
YP
) were mainly intelligible to unfamiliar people, 22 (10%) were mostly unintelligible to unfamiliar people, 67 (30%) were mostly or wholly unintelligible even to familiar adults. However, 89% of parent/carers said that they could communicate 1:1 with their young person. Of the 128
YP
who could independently complete the questions, 107 (83.6%) were happy with their communication, nine (7%) neither happy nor unhappy and 12 (9.4%) unhappy. A total of 72 of 224 (32%) were provided with one or more types of
AAC
but in a significant number (75% of 52 recorded)
AAC
was not used at home, only in school. Factors associated with speech impairment were severity of physical impairment, as measured by
G
ross
M
otor
F
unction
S
cale level and manipulation in the best hand, intellectual disability and current epilepsy.
Conclusions
In a population representative group of
YP
, aged 16–18 years, with bilateral
CP
, 63% had impaired speech of varying severity, most had been provided with
AAC
but few used it at home for communication.
Publication
Child: Care, Health and Development
Volume
40
Issue
2
Pages
149-157
Date
03/2014
Journal Abbr
Child
Language
en
ISSN
0305-1862, 1365-2214
Short Title
Speech, communication and use of augmentative communication in young people with cerebral palsy
Accessed
31/03/2025, 14:03
Library Catalog
DOI.org (Crossref)
Citation
Cockerill, H., Elbourne, D., Allen, E., Scrutton, D., Will, E., McNee, A., Fairhurst, C., & Baird, G. (2014). Speech, communication and use of augmentative communication in young people with cerebral palsy: The SH & PE population study. Child: Care, Health and Development, 40(2), 149–157. https://doi.org/10.1111/cch.12066
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